Monday, May 21, 2012

Blonde Hair...Big Hearts....Can't Lose!

Yesterday was the Blondes vs. Brunettes flag football game. This girl is not cut out for super intense contact sports. It's always seemed more "natural" to me to flip over a 4-inch wide beam (though those days are long gone...oh gymnastics...you're not as easy at 25 as you used to be...).

I had a fabulous time. Check out the photos and video below, and then sneak a peek at what I said today at the Board of Directors meeting for the California Southland chapter of the Alzheimer's Association. What an honor to be asked to speak.

Go #22 (a.k.a. me) and Team Blonde! 
Some of the lovely ladies of Team Blonde!

Adore this girl--one of the first people I met at Pepperdine, one of people I intend on knowing when we're old (and maybe gray?).

November co-captains for the Junior Committee's Walk to End Alzheimer's team!

Team Blonde. Aren't we pretty in our headbands? They are amazing and don't slip at all...check em out at BIC Bands!




On Thursday of last week, Team Blonde’s football practice ended with my face-planting straight into the ground. The dirt on my face that night certainly indicated I’m not meant to be a football player, but as I put the top down on my car and drove home, I felt so unbelievably energized nonetheless. I sang obnoxiously loud to the music I was playing and as I do on many nights felt very grateful to be alive.

When I pulled into my garage though, all of a sudden I felt as though I had been sucker-punched in the stomach, because I realized what had happened that night. I became my mother’s daughter. I didn’t care how ridiculous I looked, because I loved what I was doing. I was having fun, and I was surrounded by amazing people. If there is anything I remember about my mom, it’s that she knew that life was best spent with the people you love, having fun, regardless of how you look or what others think.

I wish I could have called her that night to tell her, “Mom, I think I get it. I think I know how to do this whole thing called truly enjoying life,” but in October, after 10 years battling Alzheimer’s, my mom passed away, and so I instead found myself sitting down to write just how I found myself at this point. 25 years old and without a mom to call to celebrate…and then, without a mom to call for comfort.

When I was 15, my mom was diagnosed with early-onset Alzheimer’s at the age of 50. The once bold and fiercely independent woman I knew quickly became a stranger to me. My mom has always been known as a force to be reckoned with, and so it was very odd to watch her go through the initial stages of Alzheimer’s. At first it was the little things: she would forget to pick me up from school, or she would go to pick me up from school instead of work, and we once got lost on a drive home from the airport.

Then, when I was 16, one day my mom asked, “What’s your name again?” I don’t even remember what I said in response. Even as I was writing what I would say today, there is much I feel I have forgotten, because Alzheimer’s just didn’t make sense to me at the time. I could process other diseases, but Alzheimer’s wreaked havoc on my family as we tried to figure out how to handle the loss of my mom in so many ways.

I still remember the afternoon of my high school graduation. At this point, my mom had been battling Alzheimer’s for about 3 years. Just a few weeks before, my family and I had flown to North Carolina to see my brother graduate from college, and after my mom had made it through traveling and attending his graduation, it didn’t occur to us that much might change in a few weeks.

However, a few weeks of early-onset Alzheimer’s had a huge impact. The day of my graduation, my mom refused to get ready to go with us, insisting that the clothing my dad had laid out for her was for children and that he was trying to trick her. Just five minutes before my brother and I were about to leave to go by ourselves, my mom changed her mind and decided to join us. Fortunately, graduation was fairly uneventful, and on our way home, we decided to stop to get some dessert to celebrate that night. As we made our way to the table to sit down, my mom stopped and started yelling towards our table while looking at my dad: “I’m not going with him! He hits me! I am not going with him!”

A moment of uncomfortable silence followed as we decided what to do—I was ready to leave, but my aunt, my mom’s sister, kept insisting: “No, Alex, you deserve to be able to celebrate! We can have dessert! It’s okay!”

With Alzheimer’s and any life-threatening disease, there is this inclination to hold onto what is “normal.” When I was 19, I was diagnosed with cancer, and I remember trying to maintain normalcy as much as possible—so chemo would just be a blip in my life, not the definition of my life at the time. In the very same way, that night at graduation and all throughout my mom’s fight with Alzheimer’s, my family and I fought the battle of how to maintain “normalcy.” The night of graduation, normalcy was having dessert with my family, because if my mom could make it through dessert, then maybe things would be okay. We could do what “normal” families do.

Wednesday, May 16, 2012

P.S.

I'm well aware that I've now written a post every day for the past three days. I like it. I don't know where this writing energy has come from, but I like it!

Freely ye received, freely give.

I hold onto good quotes. Things that make me think and things that apply to me.

In a very literal sense of giving, Pepperdine's motto has resonated a lot lately.

As I've mentioned before, I am in the midst of two fundraisers. This past weekend I completed the EIF Revlon 5k for Women, and this coming weekend, I will be playing flag football (yes, it's going to be hilarious) in a fundraiser called Blondes vs. Brunettes for the Alzheimer's Association. As I prepared for both events, I emailed friends and family about supporting me through happy thoughts, prayers, emails, and, if possible, donations.

While the actual amount of money I have raised so far astounds me ($600 for the 5k and $1000 for the game), I am more so blown away by the sheer number of people that have donated. 17 people donated for the 5k, and 29 people donated for the game! Wow. I am grateful to have so many people supporting me and these amazing causes.

I shared with the same friends and family who I asked to donate that I also would be donating to both events. I am in this fight against cancer and against Alzheimer's with more than just my words, with my actions as well.

People often preface asking for donations with: "I know it's hard to hear someone always asking for money, because there really are so many good causes," but what I've discovered is that for all these good causes, I want to donate. Since they are ALL good causes, I want to support them ALL. My donations are rarely large donations--usually around $15, but as I fundraise myself, I know that $15 makes a difference. Even $5 can help a friend meet a fundraising goal--and $5 shows support.

Monday, May 14, 2012

And then I did a 5k...

5 years ago, I looked like this:

...and then after a couple weeks of chemo I looked like this:

...and so some friends did a 5k for me dressed like this:

3 years ago, I walked the Revlon 5k and rocked my medal like this:

So this year I did it again with my friend Jenn wearing hot pink laces like this:

...and I got a flower and cute button for being a cancer survivor that looked like this:


After the 5k, we went to the Survivor tent where we feasted on yummy drinks and cupcakes like this:


There I also managed to get cupcake on myself, which wasn't as bad as when I spilled my smoothie on my cute reusable tote resulting in this:

And at the end of the day it was just fabulous in general, because for several hours that day, I got to wear a super cool hat just like this:


Four years ago, when I came back to school post cancer-fun my junior year, I worked briefly at a place called The Little Gym teaching gymnastics classes (brief background: I did gymnastics for 10 years and then taught for very nearly the same amount of time...). The owner of the gym, Kristen, was amazing. Inspirational. She had her head on straight and knew what she wanted to do with her life, and it blew me away, because she was only a couple years older than I was! I remember one of my first weeks there, Kristen got engaged. She's one of those people that was too pretty...and then the engagement ring just made it ridiculous! She glowed, and it was evident she was so very happy!!

My senior year,  just after I graduated and just after I did the 5k, Kristen and I reconnected via a website called Survivor Celebration. I had joined it and actually gone trapezing earlier in the year with cancer survivors in and post- treatment (what an experience!) and saw Kristen's name pop up. This is what Kristen wrote on the website:

I am 25 years old and have recently opened my own business in Calabasas, called The Little Gym. In January I was diagnosed with a very rare type of cervical cancer. My family and I were shocked by the news. I am getting married at the end of May and this was not the type of news I was expecting before my wedding day. I had to have a radical hysterectomy, but was fortunate enough to save my ovaries. My surgeon recommended light radiation and chemotherapy, immediately following my surgery, as my treatment. After doing a lot of research I decided to go an alternate route. It has been about 3 months since my surgery and I feel great and am very comfortable and happy with my decision to not go through with chemotherapy and radiation. Some doctors may think im crazy for not doing the treatments, but I have been fortunate enough to find a doctor that is comfortable with my decision. My lifestyle has been changed drastically due to my alternative treatment but each day I am getting more and more used to it. I still plan on getting married at the end of May and I have gotten the okay to go on my honeymoon. It has been a short, but what seems to be very long, roller coaster ride and I know I will look back on this one day and realize how much I've learned from this whole experience.


My heart sunk into my stomach when I read this. Kristen was amazing, and I felt terrible...but I also knew that feeling terrible wouldn't do much, and so I just reached out to her just to say hi and check in. We caught up over the exchange of a few messages and Facebook.

In November of 2010, Kristen wrote, as part of a longer message: Thanks soo much for your message, I truly appreciate all your thoughts and prayers.  I'm trying to keep my head up as much as possible, but it has been a battle. I just cant seem to bounce back the way I did from the first surgery. 
She exuded positivity and strength, and it was the only time I've heard even a small bit of exhaustion from her (and mind you, she opened her own business at the age of 24!). She was rightfully tired after all she had been through, and while my faith sometimes wavers, I really did think of Kristen and pray often for her. 

In April of 2011, Kristen passed away.

Kristen, on Saturday, I ran for you.


Three years ago, when I did this 5k, three people joined me. One woman was named Tanya, who you can see in the photos above. Tanya was actually my supervisor for a job I had as an undergrad at Pepperdine. Tanya always had a bubbly personality, she was always super positive, and she always offered her help and kind words to everyone around her. When she joined my 5k team, I was surprised--she was my supervisor, not a fellow student--but I was also so equally pleased! I knew getting to USC by no later than 7 a.m. would be a very early morning, and Tanya guaranteed would be bright and cheery when we arrived.

In March of 2011, Tanya and I caught up when I asked friends to make videos for my students about college. She was so excited, and it was so wonderful to catch up with her.

http://www.youtube.com/watch?v=YRK2-fNzQes (Was she not the sweetest?)

In June of 2011, Tanya took her own life.


Tanya, on Saturday, I ran for you too.


The 5k this year was very special to me for many reasons.
5 years cancer-free.
My first Mother's Day weekend since my mom passed away.
In memory of Kristen while remembering completing it with Tanya.
Ladies, all three of you are missed more than you know, by more than just me, and I hope you are celebrating in heaven together!

Sunday, May 13, 2012

"Sometimes it’s tough to miss someone so wonderful."

"We feel happiness and joy to be together, to celebrate such a wonderful woman, and we also feel this indelible pain of losing someone we loved so much. "


In November, when I said those words, I knew they would unfortunately be true...and Mother's Day is one of those days that proves that losing someone indeed is not a temporary pain. It's not going away. I had a rare morning where before I opened my eyes, I really did think my mom would be here...my healthy, pre-Alzheimer's mom, and wow, it sucked to realize that was not true.


I am beyond blessed in my life--I didn't realize Mother's Day would be tough, because it's probably been 9 years since I've had something even close to a normal Mother's Day (by normal, I mean one in which your mom knows who you are...).


While I'm tempted to enjoy a margarita at 7 a.m., I instead decided, hey, it's time to make a list. (I like lists...they're neat, simple, and organized.)


So, here you go.


Top Ten Life Lessons My Mom Taught Me


10. Expiration dates are just a suggestion.

The real test is: Do you reasonably think you can eat this without getting sick? If not, put it back in the pantry or fridge. Surely it will be ready to eat in a week or two. I have heard this from my dad, aunt, and uncle too. Must be a family thing.

9. Buy a larger size. You'll grow into it.


Case in point: This jacket.

8. Don't let other people tell you what to do.


Oh yeah, my mom married my dad despite her parents not attending the wedding. This year they would have celebrated their 40th wedding anniversary. Does a more appropriate and positive use of the word badass exist? I think not.

7. Dogs are a (wo)man's best friend.

A dog will eat your child's face...


...and it is entirely possible to convince your dad to get you a dog despite his bold statement that we will NOT be buying any dogs, just looking at them.

6. Cubs fans are the best--and there is never an age at which it's too early to start developing one.


5. If you have kids, you can and should get them to wear ridiculous things and then take photos of them.

Supergirl (?) realizes bags are the best. Addiction begins.


 Yes! Doily...or according to Chris, muumuu.


No words to describe...


all the awesome outfits...


my brother wore. (Suspenders!)


Yes.

4. "Find somebody you want to spend the rest of your life with, and hold onto her forever." (Technically an Italian Job quote--and would apply more to Chris given the pronoun used...so let's pretend it says him/her. That said, well done, Mom. You definitely did find him. We all should be so lucky.)



3. Making someone smile? Totally worth it, regardless of what it entails.

In case you didn't know, tree-skirt ballet is about to take off big time.


2. Family wins.





In case you were wondering, harmonicas taste good.

and of course...
1. Life is tough. People aren't always going to be nice to you. Suck it up.
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